Interview: Rob Langston, Author & Inspiration

Today’s interview is with inspiring individual Rob Langston. Rob is a graduate of the University of West Georgia despite being functionally illiterate. He is a published author even though he toils to accomplish what many of us do with ease—read and write. He has conducted assemblies for more than 500,000 children in the United States, traveling 100,000 miles annually to present his powerful message. Rob is the author of For the Children: Redefining Success in School and Success in Life and The Power of Dyslexic Thinking. Since 1996, Rob has been a resource consultant to Vistage, an international organization of over fourteen thousand CEOs (many of whom also have dyslexia). Camp Spring Creek: For those of us who aren’t CEOs or likely to run into one of your professional development sessions, can you briefly tell us about the steps you used to overcome your personal battle with dyslexia?

Rob Langston: Anything smarter, faster, stronger, or that can overcome obstacles is what CEO’s want. That’s what the dyslexic mind wants, too. Being dyslexic, the majority of my problems had to do with getting through school in classrooms. I looked back and realized I was going through the same 5 steps every time and I turned those steps into a three-hour program. By the end of the program, people can help themselves think like a dyslexic, if they don’t already. A high percentage of CEO’s come up to me after each program and tell me they are also dyslexic or ADHD. It’s always refreshing to have something that had been a negative thing in school turn into a really positive thing in life.

The five steps are: First, set a goal and write it down. Second, get educated on your goal (what it will take to accomplish it). The third step is what really sets this program apart, because it has to do with how to set up reinforcement for the motivation for each goal. For example, your ringtone can be an affirmation or your screen saver can be a typed message of your goal, etc. Once you set that up, the fourth step is focus. You can see the path and get what you want when no one else does. Another name for that is leadership. The fifth step is the action initiative. We take action and get started.

CSC: How do you learn best?

RL: I’m an auditory/visual learner. Because I read so poorly, every member of my family read to me when it came time to study. I could listen and absorb for longer than they could stand to read. Today, I devour audio books. Sometimes I’ll listen to the same audio book two or three times until I’m learning at full capacity and taking it into my life as something that will impact me. The repetition of listening is a very strong learning tool for me and I think it works for many others. As far as visual learning, I observe and watch everything until I feel I have visual mastery of what I want to accomplish—whether watching sports or a social situation, etc. When I am ready, I join in and I usually find great success. Today, I use many YouTube videos for everything from work-related issues to learning how to build a chair. I repeat the watching until I have visual mastery and then I’ll go do it. My main weakness is that if you hand me a manual and say, “Read this, then do it,” that’s challenging for me.

CSC: You have spoken to hundreds of thousands of youth across the country. What commonalities amongst these children and young adults do you encounter? Is there one question they all seem to ask? A set of shared concerns or misunderstandings that they have in common?

RL: My observation is that kids are kids are kids. I have spoken in schools in Harlem that hadn’t had school assemblies in 15 years because they went so poorly and we’ve had great success. I’ve also spoken in private schools in San Francisco and had success. Dyslexia is not a place or race thing; it’s a brain thing. If you talk to kids about what they’re interested in, you’ll have them. I tell them about what it was like emotionally to hide, lie, and cheat in first grade and they can relate to that.

As far as the kids asking me something, for most of them it is more about feeling so relieved that someone is talking about this struggle out loud and in a positive light. The most common thing I get is when a kid will raise his/her hand and say, “I’m dyslexic too,” in front of all their peers. I always congratulate them. That’s a powerful event for them. Finally, they don’t feel alone and are held in a positive light. This also helps the unidentified dyslexics start thinking about things and getting help or being fearless and accepted. I also talk to teachers because they’re the first line of defense.

CSC: You published your first book, For the Children, using the author name “Rob Langston, LD.”We assume the “LD” stands for learning difference, and enjoy that you included it in your title where most people include a list of their educational degrees. Can you tell us a little more about this decision and what it says about your approach to life and work?

RL: That’s part of taking ownership of who you are. Having dyslexia is a part of who I am, no matter what. My struggles with reading make me who I am. My empathy with other people who struggle with any types of challenges is part of who I am, too. The strengths that come from the way my mind works in business and life are a part of me, too. When I first got out of college and started making money, I went out and bought a shiny, red, turbo sportscar and got a specialized tag. I had the tag say: ABLE  LD. I’m a learning abled person with a difference. My son has dyslexia and I want him to see the benefits to the way his brain works, too. He had early intervention and is in 3^rd grade and reading at a 3^rd grade level, so he has a better jump on life than I had. His creative mind is still there, too, and I’m so glad for that. Everyday, I see him using his dysxleic mind right alongside his reading mind.

CSC: You’ve blogged for Psychology Today about being a “techno dyslexic” and, specifically, how your GPS unit saves you throughout your travels. Are there any other tools you “can’t live without,” technological or otherwise? If so, what are they and how have they become so important in your life?

RL: Today, we have voice recognition technology. You pick up any iPhone or Android phone and the little microphone is right there to press and tell what to do. It’s a more efficient way of working. I can also dictate into my phone while I’m driving and I’ve done that for entire books that I’ve written. Just recently, I started using the calendar function on Macs a lot. Dyslexics can be disorganized at times, to say the least. I switched everything over to Mac and iCloud and everything syncs no matter what device I have with me at the time. My son is involved in project-based learning in school and he’s used the iPad for that twice now. It’s really nice because there are so many apps that can help him with spelling and writing.

YouTube is also a huge technological resource. I do lots of editing and I utilize that as a technology advantage everyday because it like the audio/visual way of taking in information as well. There’s a lot of other help out there, but it’s text-based. Now that I’m all Mac-based, I find myself using the text-to-voice reader a lot and that helps utilize those text-based sites. Social/visual media is also so accessible. What I do at dyslexia.com couldn’t have been done 3 years ago because the broadband wasn’t available. Now, we broadcast in 34 countries. I’m proud of reaching 500,000 kids live in the school system, but, online, things are unlimited and available on every SmartBoard for every teacher that wants it.

Interview: Wendy Welshans & Forman's Rainforest Project

Today’s interview is with inspiring individual Wendy Welshans. Wendy has been a teacher at the Forman School for students with dyslexia and learning differences for 22 years. She is the director of the Outdoor Leadership Program and the Rain Forest Project. She teaches biology, anatomy and physiology, and the Tropical Ecology Seminar. Wendy is head of the Forman Boat Works, Forman's own wooden boat building program. She coaches the whitewater slalom team and leads weekend backpacking trips. The highlight of many students’ experience is the scientific research expedition to Costa Rica that Wendy leads each year. Wendy is also a Registered Maine Guide and a Wilderness First Responder. She and her daughter, Jorie, live in an alternative energy home in Sharon with their dog, Max, and 18 chickens.

Camp Spring Creek: From what I understand, The Rainforest Project that you founded at Forman School is open to students from area Connecticut public high schools as well as Forman School students. How do you find this blending aspect of the program and in what ways do the students surprise themselves when they work with others of different backgrounds, strengths, and weaknesses?

Wendy Welshans: That’s an interesting question. Many times it is the public school kids who learn and change attitudes—they have a completely different view of learning differences than is the reality. Many times you hear them say things like, “You guys are so smart” or “You’re so creative” or “How did you come up with that idea?” For our Forman students with learning differences, sometimes they feel inadequate initially, then after they get to know the public school kids they see how they themselves shine and how everyone’s strengths help the team.

CSC: At the end of the day, when all the testing, measuring, tagging, sorting, and hypothesizing are done, even the most gifted, fortunate, or enthusiastic science student needs to be able to articulate his or her findings in writing so that others can understand. Likewise, truly innovative research offers something new, implying that students must be well-read in their particular area of research in order to come up with a new finding. Do you encounter resistance to in-depth reading and writing from your students and, if so, how do you approach this?

WW: Good question. Because the students pick one of our 4 or 5 research projects to focus on, there is a sense of ownership from the beginning. It also helps that, for the most part each year’s Rainforest Project team is chosen by the previous team, as people that could take their research to the next level and start where they left off. Students on the team feel that sense of ownership and want to have that, too. We try and pair them in research teams where everyone has a certain affinity. Say Jon doesn’t like to write and Sam loves to write, but doesn’t like to read. They know that the key to scientific breakthroughs is knowing when you are witnessing one, and you can’t witness one if you don’t have background knowledge on your species.

CSC: Among many other accomplishments, The Rainforest Project and its working, learning, students and staff members have earned two patents. One is shown in Journey Into Dyslexia: the extraction method you use to extract spider silk from the Golden Orb Weaver for commercial use. How did you take your students through the patent process and, in particular for those students struggling with writing or reading, how did you find their experiences of these final steps?

WW: So…getting our patents on spider silk is quite a story unto itself. These webs are strong! In the mid 1990’s, we would play with these spiders after coming back to base camp from hiking to where we were collecting specimens. We would feed them in their webs and have contests between spiders on the speed it took them to capture their prey.

The more we read about the spider in the field, the more curious we became as to why the webs were so strong. We made funnel traps which were 4’ high to capture the insects drawn into the area of the web. This was to see if particular insects were giving the spiders the ability to produce strong silk. One day, a student of mine was holding one of these golden orb weavers and said, “Look!” As he let the spider fall, he spun a Coke bottle to collect the silk. It seemed to never run out of that silk. Since then, each year we would try and collect it in a more efficient manner. Because this method had not been tried in the field before, the patents were applied for as a protection for the people and the species not to be exploited. We obviously knew this could and will go somewhere.

The students and I wrote our scientific methodology for our extraction technique and a few years later another group of students and I wrote up the methodology of the spider farms. For the students, doing the illustrations or labeling the illustrations was just as much a gas as seeing our science paper turned into legalese!

The motivation for what is legit rivals most. Our kids want their creative juices to flow and for a reason. Seeing their names published or, better yet, hearing a professor ask their opinions on a subject they have immersed themselves in is quite a motivator. For some, it is the first expert advice they have ever given. The students like that feeling of knowing and understand that they have earned that knowing through their prior research. The hope is, they take that feeling, that success, to college with them and they immerse themselves into each class as they did studying spider silk at Forman. They have seen where immersion can go.

CSC: What was your own path of discovery like with dyslexia? How did you feel at first, where had you struggled most, and—following diagnosis—where did you find the most relief?

WW: I knew I was a little different from my friends, who walked through the academics like eating a bowl of cereal…effortless. I struggled with reading and writing and sitting in one place. I was diagnosed with ADHD when I was 12; after college, my testing showed dyslexia. My parents were very supportive and gave me a vast array of projects on our property. I have had a creative, scientific mind since the age of 3. My folks were so disappointed when I failed Biology and struggled with Ecology, which seemed to be what I had a propensity for. My teachers, though supportive at public school, had no faith in my ability to go to college, especially SUNY College of Environmental Science and Forestry at Syracuse University. I attended Erie Community College and took every science course they had to offer. It was very hands-on and challenging. I received an Associate Degree in Applied Sciences and the Science Award at graduation and I matriculated to SUNY-ESF at Syracuse. I found college to be amazing because I was immersed in heavy science curriculum that was hands-on and rigorous.

Always, my relief or maybe my break from my LD has been building things, usually out of wood. Usually, I build something out of my head. When I was a child, it was small boats or game boards. Now, it is not much different. I teach wooden boatbuilding at Forman and am immersed in the Rainforest Project and in the species of that tropical forest just as I was as a child in our forest at home. I have always lost myself in the forest, exploring with a backpack of field guides.

Interview: Jack Horner

Today's inspiring individual is John R. “Jack” Horner, an esteemed paleontologist who was once a senior technical advisor (and part character inspiration) for the Jurassic Park films. Jack's story of struggle and triumph is especially powerful, as he moved from undergrad drop-out to the recipient of a MacArthur "Genius" Fellowship. Jack was born and raised in Shelby, Montana and attended the University of Montana for seven years majoring in geology and zoology. Although never completing a formal degree, the University of Montana awarded him an honorary Doctorate of Science in 1986. Jack and his students excavate and study dinosaurs, particularly their growth and behavior. Jack has published more than 180 professional papers, 9 popular books, and more than 100 popular articles. Jack is Regent’s Professor of Paleontology in the Department of Earth Sciences, and Curator of Paleontology at the Museum of the Rockies, Montana State University in Bozeman, Montana. He is also a Senior Adjunct Scientist at the Smithsonian Institution. Jack lectures on dinosaurs, evolution and dyslexia. He lives in Bozeman. Camp Spring Creek: In addition to your accomplishments in paleontology, you’re also an author. Which aspects of writing come naturally to you and which do you find you have to make accommodations for? Many writers are often told to “write the kind of book you’d love to read yourself.” Several of your books are for children. What were reading and writing like for you as a young child?

Jack Horner: Reading is the hardest thing I do in my life, so with regard to reading, nothing comes easy and I have to make accommodations for every part of it. Writing is also difficult, but I learned two things early in my life that have helped a great deal. One was learning how to type. My mother was a typist and spent much time teaching me how to type, and I also spent a great deal of time learning how to make letters so that I could write well enough that I could read what I wrote, even though I read one letter at a time. As a child and young person, K – 12, I didn’t read much of anything, but I loved to look at the pictures in books and did my best to read the captions. I didn’t write much either, but always liked the idea of writing.

CSC: It’s long been accepted that one thing people with dyslexia naturally excel at is thinking outside of the box. In your field in particular, you have to manage so many eons of historical information, manage teams of people on a dig, organize your thoughts for academic research, as well as constantly push for the “next big thing.” Are there ways in which you’ve noticed your own abilities to “think outside the box” in your line of work? Please tell us about one or two by way of example.

JH: I have no idea what or where this box is or what it's like to be in it! Managing eons of data, together with numerous teams of people on digs, in labs, or any place else, and thinking and writing about new ideas that come from many different sources is what I do best. It only requires spatial thinking.

CSC: Speaking of thinking outside the box, what’s this we read about a genetically created dinosaur chicken? (We had to ask…)

JH: It’s a long story, but basically I have a team of geneticists working on retro-engineering a bird back to a dinosaur, or at least some of their characteristics by modifying genes that have been dormant for many generations.

CSC: You spent seven years studying as an undergrad and did not earn your bachelor’s degree. Years later, all of that was moot, but there must have been moments when you considered giving up or feared the worst. What would you share with a student in a similar position right now? What could you tell that eager, smart learner to help him or her stick with it?

JH: Giving up never entered my mind, but there was always the chance that my dreams would have to be modified, and for some period of time they were. My profession is also my hobby so there is no way it can be taken from me or that I could not do it. For a few years I worked for my father in his gravel business, and on the weekends or my time off, I worked on my hobby. I was always striving to get a job in paleontology, but I always knew the chances were slim. But, what was the worst that could happen? Work as I was, and do my hobby on my own time? Not so bad! When you have nothing to lose, even the smallest of accomplishment is success!

A Message from Jeanne Betancourt

Today we are pleased to publish this message from author, artist, teacher, and inspiring individual Jeanne Betancourt. Jeanne has been honored by the Kildonan School and also received the 2004 Life Achievement Award from the Hamilton School at Wheeler. Jeanne has taught in junior and senior high schools and was on the graduate faculty of the Media Studies Program at the New School for Social Research. She has served as a consultant, speaker, and workshop leader on adolescents, writing, and the media, and is a past president of New York Women in Film and Television. Her website offers a wealth of resources and we encourage you to check it out.

I took my first tap class when I was six-years-old, the same year I was supposed to learn to read and spell. I loved my Saturday morning classes in Miss Irene’s studio above a storefront in downtown Rutland, Vermont. When Miss Irene realized I was having trouble following her right foot/left foot directions, she put a red ribbon on my right tap shoe. I am convinced that my 12 years of tap classes as a kid and the tap classes I take today help me with my dyslexia. My feet learn what to do and which foot does what. While the beat goes on, my brain easily identifies right and left as I learn dance steps and routines.

People are often surprised to learn that I am dyslexic. They think that being dyslexic would prevent me from being a successful writer. I believe that being dyslexic has helped me as a writer.

Since learning to read and write was difficult for me growing up, I paid more attention to the world around me. I took clues to what people were thinking and feeling from their speech and body language. Today, as an author, it is easy for me to imagine what it would be like to be in someone else’s shoes. Being able to put yourself in another person’s place and understand how they feel is a key to being a good writer. I also have strong visual memories and can easily imagine the places I’ve been as I describe them for the reader. These skills are more important for me as a storyteller than the skills I don’t have because I am dyslexic—like being a good speller and a speedy reader.

The story I wrote in MY NAME IS BRAIN BRIAN follows Brian’s adventures, friendships, and family life before and after he learns that he is dyslexic. By the end of the story, he realizes that the mistake he made spelling his name on the board the first day of sixth grade is true. He is a Brain.

Anna, in a series I wrote called The Pony Pals, is also dyslexic. In every book, I remind my readers about that. Anna doesn’t like school as much as Pam and Lulu. When they write their ideas for solving Pony Pal Problems, Anna draws hers. Like many dyslexics, she has artistic talent. Anna’s dyslexia is a big part of the plot for two of the Pony Pal books, #2: A PONY FOR KEEPS and #38: PONIES ON PARADE.

I hope that my personal story and novels help dyslexics of all ages recognize their own strengths. And that the people in their lives—teachers, parents, friends—acknowledge that we all have individual learning styles. Here is my twist on the American proverb: “You can’t tell a book by its cover.”  You can’t tell a child’s potential by how easily they learn to read.

Interview: Dr. Keeney, "Hero Award" Recipient & More

Today’s interview is with inspiring individual Dr. William Keeney. Bill is the English Department Chair and has taught English at Delaware Valley Friends School for over a decade. Bill has a strong interest in educational research and pedagogy and was featured in the HBO documentary, Journey Into Dyslexia. He has published poetry, plays, and scholarly articles in American Literature, and presents on reading at national conferences such as the IDA. He was awarded the West Chester Public Library's Literacy Hero Award in 2007. Bill earned his B.A. at Columbia University and his M.A. and Ph.D. at Boston University, where he studied with Nobel Laureate Derek Walcott. Camp Spring Creek: We were so moved by your classroom demeanor and educational philosophy in the HBO documentary, Journey Into Dyslexia. For our readers who have not seen the video, would you mind summarizing your points?

Bill Kenney: Not being able to read is not your fault. One in five people have trouble learning to read if they are not taught well. This is because of a specific part of your brain that is different from the “norm” but is NOT the same as a difference in intelligence. You can have superior intelligence and still not be able to read without effort. If you didn’t get taught well, that is the fault of the educational system that didn’t get you the help you need and deserve. (If you are at Camp Spring Creek, count your blessings because they will be able to teach you to read the right way.) Even if you were taught to read, reading still might be a struggle because of how your brain processes writing into oral language. Because our current society is so dependent on text, you do have to read well enough to get by. Fortunately, there are some pretty good technological aids that you can use that will help you get through, such as audio books (particularly Learning Ally, especially for schoolwork) and text-to-speech tools. However, even if reading remains a struggle for you, you can still live a productive, successful, and happy life using your other gifts and talents.

CSC: We understand that, despite stereotypes, many children with dyslexia come to love reading and stories. When teaching required texts in a mandatory education setting, we’re curious about what you see on “the front lines” and how you address that. As an English teacher at a school specializing in dynamic learning experiences for students with learning differences, some might think that you have “the hardest subject” to teach. What kinds of resistance do you face in the classroom and how do you work with that?

BK: The key to getting “buy-in” is hope. It begins by “de-mystifying” the problem by explaining its origin in scientific terms and re-assuring the students that reading and intelligence are two very different things, and the fact that they might be struggling to learn to read is not their fault. However, I also emphasize that learning to read is a very core skill, and that with effort and skilled instruction, they can learn to read better and with less effort. I am honest that it will take time and hard work, and that they may never become readers who “enjoy” reading, but they can become readers for whom the value of reading and what reading brings into their lives can be a reality. Finally, I provide audio (with variable speed playback so that they can listen along faster, if they can process it) so that they can have access to books that are at grade level even if their reading is not there yet.

CSC: As a lover of literature and writer yourself, can you tell us about a peak learning experience you had growing up—something that involved realizing how much you loved stories or how you discovered the power of literature? Feel free to share some of your favorite book titles with us from childhood to present day!

BK: I was blessed with the ability to read easily from a young age, so I began reading everything from a young age, so I don’t know if my story is going to resonate with people who struggle to read, but I am glad to share it. I remember the first time I “fell through a book.” I was sitting in an armchair and suddenly was just effortlessly reading. My memory is that the book was called Ab the Caveman, although I have looked for it since and have never been able to locate a copy. In my youth, I devoured comic books, sports stories, science fiction, horror, etc.

Then, in my senior year of high school, I read Robert Penn Warren’s novel, All the King’s Men. I remember thinking: This is a book that was not written for me, it is not about a world I know anything about, but it is absolutely compelling, rich, and insightful—this is what literature is all about. In college I began to enjoy poetry such as Walt Whitman, Emily Dickinson, WB Yeats, TS Eliot, and Wallace Stevens.

Some of the things I have read most recently that I love to recommend are: Paul Harding’s Tinkers, Annie Proulx’s short stories, and Charles Frazer’s Cold Mountain.  However, I don’t think what I read is necessarily what someone decades younger than I should read! For young adults, I think The Hunger Games is the best of these kind of series, I always recommend To Kill a Mockingbird and Catcher in the Rye for high school students, and many students in my school love The Alchemist and The Absolutely True Diary of a Part-time Indian.

But my final word would be: Find your own book recommenders. Read what your friends have read and liked. Read several books by the same author or in the same genre. Your teachers will probably introduce you to “classics” like The Great Gatsby, but on your own, explore. Read widely. It doesn’t matter nearly so much what you read as whether you read!

CSC: Camp Spring Creek feels strongly that the Orton-Gillingham approach can be beneficial to all types of learners, not just children with dyslexia or other learning differences. We also stand behind the belief that this approach can be integrated successfully into the public school and home learning environments, with proper training and information. For our parents or teachers with children at home, can you share a basic technique or skill that you teach in your English literature classroom? Perhaps something that could easily transfer into the home or public school learning environments such as a word game, a reading challenge, or some other exercise…whatever comes to mind.

BK: You are correct that good, systematic teaching is beneficial to everyone, particularly when it comes to the basic skill of reading. Research shows that there is only one pathway in the brain to efficient reading, and that everyone who learns to read builds those same neural networks—some just build them faster and with less effort, but the process is exactly the same. So, if we all teach all students in explicit, multi-sensory, structured and systematic ways, everyone will learn to read as quickly and as well as they possibly could! My motto is, this isn’t special education, it’s education by specialists—“It’s just good teaching.”

Since I teach in a high school and primarily with literature, I have two basic pieces of advice: If you still have difficulty reading, use audio as a support to help your speed, accuracy, fluency, and comprehension; and, for comprehension, re-read. This is what all readers do to improve their comprehension; it is just that “natural” or skilled readers can do this quickly and efficiently (as well as having the freed-up space in their minds to monitor their comprehension because the reading process has faded into automatic).

Interview: Esteemed Author Amanda Kyle Williams

Today’s interview features author and inspiring individual Amanda Kyle Williams. Amanda is the author of the The Stranger You Seek, Stranger In The Room and Don’t Talk To Strangers (July 1^st). The Random House thriller series is set in Atlanta and features former FBI criminal analyst turned private investigator and police consultant, Keye Street. Williams was diagnosed with dyslexia at age 22 and read her first book at 23 years old. The journey from struggling to read to becoming a full time writer is one she now speaks about publicly in hopes her story will inspire others with learning differences.  Camp Spring Creek: Many people hear the word “dyslexia” and the last thing they think is “accomplished writer.” How do you respond to this preconception? Are there tools or techniques you employ as a writer with dyslexia that you find especially assistive?

Amanda Kyle Williams: First of all, the perception that dyslexia is a disability creates more hurdles for a person with dyslexia than dyslexia itself. It’s a learning difference. That’s all. Apart from difficulties with the written word, we have learned that people with dyslexia are critical thinkers who think and perceive multi-dimensionally. Dyslexics have the gift of imagination, of intuition, of curiosity, and acute visual awareness and memory. Other writers sometimes ask me how I can write with dyslexia, and I always think; how can you write without it? Dyslexia isn’t a deal breaker. It comes with challenges, yes, but it comes with gifts as well. For me personally, dyslexia gave me a way of listening, of hearing, of finding the rhythm and music in the spoken word. Long before I had learned to read, I was a student of language, a mimic, a listener. This would serve me well as a writer of dialogue later in life. And when I was finally given the tools to learn to read, when I was told for the first time that it wasn’t intelligence I lacked, I began to discover literature and it was transformative. I had found that same music in books and words that I’d heard all my life.

Yes, I will always, always be a slow reader. Sometimes that means I’m a slow learner. But I’m a thorough one. And because I am so visual, I see my work in pictures as I write, in scenes—something else that serves me well. I want to be very clear. I wasn’t suffering from dyslexia before I was diagnosed. I was slamming into walls erected by a system that didn’t understand or accommodate for it. Dyslexia isn’t my burden. It’s my gift. All gifts come with responsibilities and challenges. What I want to say to everyone who has struggled to learn, struggled with the perception of others, watched their children struggle, is that the key for me has been to recognize the natural talents that set us apart as dyslexics and focus on developing them. So we’re slow readers. So what? Once we are able to read, we do it with the kind of clarity and absorbency that is another gift of dyslexia.

CSC: You and Camp Spring Creek co-director Susie van der Vorst recently met at the Georgia IDA Conference. Tell us a little bit about what you presented there regarding your own story with dyslexia:

AKW: It was a great honor to be asked to speak at IDA. For me, in a way, it felt like some far off mountaintop. There was a time in my life that I couldn’t have imagined myself doing anything beyond toiling to buy the groceries and protecting the biggest, darkest secret I’d ever had—that I couldn’t deal with long text. I could read you a sentence when I dropped out of school at 16. I could spell words. But string them together into paragraphs and pages and my recognition and comprehension went out the window. It was a kind of jigsaw puzzle for me, reading, and it was one that didn’t begin to piece itself together until I was diagnosed at 22 years old. I read my first book cover-to-cover at age 23.

CSC: You’ve held jobs in more than half a dozen different fields, from textiles to pets to private investigations. How did you find your way to writing, and at what point along that journey did you first identify as “a writer”?

AKW: [laughing] My resume is a great example of someone incapable of holding down a job, isn’t it? Well, let me first say that you have to work a lot to pay the rent when you don’t have a formal education. I did the kinds of jobs I could do without a diploma or a college education. I bluffed my way into some of them. We get good at bluffing when we’re hiding big secrets. Dyslexia wasn’t something I talked about for most of my life because it was surrounded by a lot of shame when I was a kid. I wasn’t performing the way my peers were performing. Words like "slow," "stupid," and "doesn’t apply herself" were the everyday norm for me. Takes a while to shake that. Even after I was diagnosed, I shared it only with my family. Most of my friends had no idea at all until I began to speak publicly about my experiences. I had a job as a courier in Atlanta for a time and they’d give you those huge street maps. There were days it was a complete jumble to me. I think I used more gas than anyone else on the team trying to find delivery addresses.

I actually started writing about 5 years after I learned to read. Inexplicably, words and sentences, the things that had turned my young life into a secretive little cave, just wouldn’t let me go. I wrote my first book at 28. It wasn’t very good. The next 3 weren’t any good at all. It would take me many years of nurturing the craft and working odd jobs to support my writing habit before my work was strong enough and honest enough to have some commercial success.

CSC: It can take years for writers to find and hone their own voice so that it becomes uniquely, undeniably theirs. The same might also be said for someone living with undiagnosed or unsupported dyslexia—it can take years for him or her to feel as though their individual voice has a place and audience in society. Why do you think that is and what advice do you have for someone in this situation?

AKW: I lived in that undiagnosed, unsupported world for many years. When you grow up feeling less than, feeling dumb, being told you’re not trying or not smart enough to do what is asked of you in school, it marks you. It just does. This is why it’s so important that educators understand and accommodate for the symptoms of dyslexia. Everything started to turn for me the day I was diagnosed, the day I learned there was a name for me, an explanation, and it wasn’t "slow" or "stupid." I was told for the first time I could learn, that I was smart even though I’d tested impossibly low on standardized testing in school. The diagnosis changed every way I felt about myself and every way I felt about my chances in the world. "Dyslexia" was about the most beautiful word I’d ever heard.

Recently, just for fun, I took another IQ test. Guess what? I scored impossibly low. I write police procedurals. I plot murder mysteries. I regularly speak to forensic scientists and pathologists and psychologists and physicians who consult on my books. But I’m somewhere in the idiot range on IQ tests. I guess I would say to anyone who struggles to learn and to read, to first remain calm. Because when you panic and you’re stressed out, the world turns into a giant crossword puzzle. It takes support, patience and persistence. Secondly, find the tools to tackle it. There are organizations now with systems for learning for children and adults that didn’t exist when I was a kid in school. I’m now 56 years old. Find those tools, use them, don’t be afraid to ask for help, and know that you have all the talent and intelligence of your peers.

So, you’re a square peg in a round hole. Embrace it and let yourself soar. I’m not diminishing the challenges. You have to want it. You have to be prepared to study and practice with the tools available. It can be frustrating and slow. It takes persistence. But the point is, you are no less capable than anyone else. It’s a matter of tapping it. And the truth is, all independently successful people have had to work their butts off in this world. All of them. And not all of them had the added gifts that come with dyslexia. So go for it.

CSC: If you have children of your own or young people in your life that you are close to, how have your experiences as a child influenced the role and influence you strive to have in their lives?

AKW: What I want every child and every adult who struggles to learn to know, is that not only is it possible to learn to read, to comprehend, to enjoy reading, to be a functioning contributor to society, and even to love literature, to get great jobs, to follow your bliss—it’s also possible to soar, to reach any height. You have as much opportunity and capability as everyone else. You walk through a different door to get there. That’s all. Just kick it open and get there.

And what I want to say to educators, especially those in the public school system, is if you have children who seem intelligent and are not performing, please look a little deeper and find out about learning differences, because sometimes all a child needs is opportunity and the accommodation of time to fully blossom.

A Tribute to Anna Gillingham

Today's blog post is a tribute written by Helene Dubrow about Anna Gillingham. Helene trained under Samuel Orton, Anna Gilingham, and Bessie Stillman and went on to found Camp Mansfield, the first camp for children with dyslexia, among other programs. Her grandson Van Westervelt was recently featured on our blog and assists us with staff training each summer. Thanks, Van, for sharing this very special document with us.

I first met Anna Gillingham when she came to Verona, New Jersey in October 1936 to give a series of three lectures to teachers. The first pertained to reading, the second to spelling, and the third topic was not announced. As we later found out, the final meeting related to handwriting and difficulties students experienced with written expression. All three meetings were stimulating and increased my interest in understanding specific language-learning difficulties.

For the previous three years I had been training individual elementary school children with some degree of S.L.D. under the direction of Dr. and Mrs. Samuel T. Orton. As a result of this experience, I was eager to learn more about programs to assist older students at junior and senior high school levels. Accordingly, I approached A. G. after the final session and asked where one could get additional training and knowledge about remediation for older dyslexic students. She was quick to respond, saying “Why don’t you come and work with me?” Anna was then a psychologist at Ethical Culture, Fieldstone School, New York City. By November 1936 arrangements were complete, and I traveled five days a week from Montclair, New Jersey to Fieldstone School, where I was scheduled to instruct individual students under A. G.’s supervision. This program was continued until June 1937 when Bessie Stillman and A. G. went to Punohu School, Honolulu.

My experience at Fieldstone was particularly important, for as a teacher A. G. was thorough and demanding. She was explicit in giving directions and took time to explain procedures as they related to individual students' needs. One cannot forget her ability to understand the learning problems and present a program for remediation. As almost no materials were available at that time, 1936-1937, Anna made her own drill cards, books, and word lists for reading and spelling. Before the Manual was developed, Florence Aiken’s book Word Mastery was of prime importance.

It was Anna who helped me to understand the specific handicaps related to dysgraphia. She increased my interest in handwriting and how it handicaps academic achievement. For some children who have serious difficulty with fine-motor functioning, she believed time spent trying to develop legible hand-writing was a waste of time. For those students she recommended learning to type. Under her direction, I taught typing to fourth and fifth grade students. Anna devised a clever scheme to teach the touch system. A frame was built over the keyboard. A bib was fastened about the child’s neck and attached to the frame. With this arrangement, children could not watch their fingers, and the system seemed preferable to covering the keys. With the latter there was a tendency to look at the hands but with the bib, this was eliminated. I believe this unique idea has not been put in practice.

During the year at Fieldstone School, I had frequent sessions with Bessie Stillman. These conferences at her apartment were scheduled after school hours and related to spelling. Such meetings with A. G. and Bessie Stillman were particularly helpful, for they were directed to the needs of older students.

At the end of the school year Anna and Bessie left for Punohu School, Honolulu. Upon their return they learned of the death of my husband August 1937. As Anna was acquainted with my family she showed special interest in our welfare and was most helpful with suggestions and frequent conferences. She followed my programs at public and independent schools with interest. She was most supportive and made trips to schools and centers to give talks to faculties. In this way she spread the word and improved understanding of specific language disability.

While I was on the staff at Phillips Academy, Andover, Massachusetts, Anna lectured there to members of the English Department. During this period 1943-1947, I learned about her programs for early identification of children with some degree of S. L. D. This interested me particularly, for I had spent over ten years trying to retrain bright, able students whose early language-learning programs were inappropriate and ineffective. Accordingly, when I accepted a position at Sidwell Friends School, Washington, D. C., 1948, it was with the understanding that a program for early identification of S. L. D. students supervised by A. G. would be initiated. It was agreed that Kindergarten children would be examined and those indicating the need for Orton-Gillingham approach would be selected and have special training in grade I through grade IV. During those years, Anna came six times each year to review data and train teachers to use phonetic-alphabetic approach for learning to read, spell and write. When Anna came to Washington she lived with me and visited the school each day. At night she reviewed the children’s folders which contained results of tests and teacher’s observations. This information she discussed in detail with me. From the data collected and consultations with teachers, decisions were made about appropriate methods to be used with individual children in grade I. The small number of students chosen for special training was mainstreamed. The classroom teacher was prepared to present phonetic alphabetic approach for learning to read, spell, and write. Similar programs were continued through the first four grades. The results surpassed our expectations and proved A. G.’s theory important. This was an experimental pioneering project which demonstrated A. G.’s belief that characteristics of S. L. D. could be identified at kindergarten level, and if taught using appropriate methods, frustrations and discouragement would be reduced. I was happy to participate in the experiment at Sidwell Friends School and the experience strengthened my interest in programs for early identification and prevention of severe consequences related to dyslexia. My enthusiasm for early identification of language-learning difficulties has never diminished.

When I joined Dr. Roswell Gallagher, 1953, at the Adolescent Unit, Children’s Medical Center, Boston, and trained tutors to instruct S. L. D. students, A. G. came frequently to lecture and confer with professional people interested in the “Cause.” She gave willingly of her time and energy. Though her sight was failing she continued and was steadfast in her desire to spread her message. This she did well.

A.G. was always interested in my Camp Mansfield project. This camp was established as a result of Dr. Samuel T. Orton’s urging. He sensed the need for summer programs to train children diagnosed S. L. D. and was eager to provide individual remedial instruction along with recreational activities. This plan was developed in a rural setting among the hills and mountains of Vermont.  A. G. followed our program at Camp Mansfield. She visited on several occasions and loved to walk about the fields near the streams talking with campers and staff members. With her experience and knowledge she had much to offer. She gave freely of her time which benefitted all.

It was the occasion of her last summer when I visited her at the Methodist Home in Mt. Vernon, New York, that she mentioned while others were going off on vacation she had no place to go. It was then that I, along with a few Boston friends, arranged for a vacation at Camp Mansfield, Vermont. At that time Anna was without sight, but she was eager and happy to make the airplane trip to Burlington. There I met her and completed the journey to Camp. Because she was familiar with the setting and remembered how we were situated, she was delighted to find her way about and enjoy the country atmosphere. Campers and staff members were quick to assist and guide her when necessary. She attended staff meetings and made wise comments. Teachers were grateful for the opportunity to share her thoughts and wisdom. A. G. was pleased and thoroughly enjoyed her visit.  When the time came for departure and return to New York, I found her fully dressed lying on the bed. As I entered, she spoke firmly and said. “Don’t think I’m tired, but when you can’t see, you have lots of time to think.” With this characteristic remark, we bade farewell. Her spirit and desire to assist children never dimmed. She labored unceasingly to promote the “Cause” in which she was so completely dedicated.

We who worked with her can never forget.

Interview: Mick Wilz

Today's inspiring individual interview is with Mick Wilz, Director of Enterprise Excellence at the family owned and operated business, Sur-Seal. Mick is the Keynote Speaker at this week's American Society for Quality conference in the Carolinas, meeting Charlotte, NC. Mick is driving his large, Lego-built model of the Sur-Seal floor plan with him to talk about visual workplaces. He's also taking time out of his schedule to come visit us at Camp Spring Creek, for which we're very grateful. Read more to learn about Mick's inspiring take on life, which focuses on a wholistic approach to communication and setting people up for success.

Camp Spring Creek: Your email signature includes two thought-provoking tidbits. First, a cautionary tagline stating, “Please consider energy conservation before printing,” and second, a quote from Anthony Robbins: "The way we communicate with others and with ourselves ultimately determines the quality of our lives.” Can you explain your philosophy behind these two mottos?

Mick Wilz: The communication quote is how you communicate with yourself and with others. I include it so that people think about it, but when you’re communicating with yourself you have to be a whole person. You can’t be fake in this world anymore. When I’m communicating, especially as a leader, I can’t go into work and preach one thing and then live a different lifestyle outside. People can tell if you’re fake. You have to be honest with yourself and follow the Golden Rule. Communication is also very in depth. It’s about how you listen to people: Are you truly listening, or just blowing people off? This sums it up: “I am the message.” As a leader, everything I do is a message. People watch you for the positive things you do and the negative things you do. This just the same for parents; kids are always watching. Communication is not just talking: You have two ears for listening so you should be listening twice as much and giving people room and time to talk and process. You have just one mouth for talking. Great communication can save your life!

As far as energy conservation goes, I found that quote someplace and I added it because it reminded me of my mother. She passed away, but we were environmentalists when we were kids and my Mom was so far ahead of the times. Recyling was part of our lives. You have to take care of the Earth and of everything. It has to do with the whole person concept, and that works with communication as well as with the environment.

CSC: We love that your title at your family owned and operated business, Sur-Seal, is “Director of Enterprise Excellence.” Tell us a little about what that means to you as a successful businessman, but also as a successful life-long learner:

MW: We’re encouraged at work to "work yourself out of a job." Not everyone has heard that before but basically, if you’re a good leader and hold on to tribal knowledge, when you die you’re not going to help anyone. Some people are afraid to share or they’re afraid they’ll lose their jobs if they give away tribal knowledge. I’m not afraid to share.You have to share the tribal knowledge and make it public so everyone knows what’s going on. As Director of Enterprise Excellence, I’m looking for what knowledge is out there that we can use (in our external environment) but I’m also doing this in our internal environment. I’m interested in anything that will help our business, but I want to make it easier for everybody and step up the bar for everybody. It doesn’t make sense to accumulate knowledge for myself only. I accumulate it for the company as whole wherever I can find it, and that feels right. I want our company to be great and to have a great company you have to have great people, so we build ourselves strong, from the internal environment out.

CSC: After building a Lego-based layout of your building and involving workers in planning the redesign, you incorporated more changes in the work environment to make it a “visual workplace.” In the New York Times, you wrote that these changes “send a message to anyone who might be struggling because they’re different: not only can they measure up in the workplace, but they can exceed expectations.” Respecting the anonymity of your employees, can you tell us an anecdote about how you have seen these changes create positive results in one individual who was struggling before those changes were made?

MW: It’s hard to focus on just one. Making these changes have helped so many people—I keep notepads full of positive notes that people have sent about the changes we made. I feel everyone has some form of learning disability. Dyslexia is just one that is in the media now and that everyone talks about. When I look back at school, there was always someone who couldn’t do math or couldn’t do sports, etc. There are just some learning differences that are more transparent in people than others. That’s just part of life. When you find your weakness, you focus on it and then move forward.

We have one mother of three children that works for us and her husband does construction work. She worked at McDonald’s and then came to work for us. She went there just for a job based on money to help the family out. She didn’t think she had much value but she came to us and was doing everything she could to make ends meet in her family. She probably struggled through school. She never went to college. Right now, she’s the first female manager on the floor at our company and she leads a team of 38 people. She’s our largest team leader and her group today just announced that they have made $460,000 worth of improvements for her department. What that means is that, last year, her team of 38 people improved processes and saved the company that much money. She’s a total hero. She walked into our plant and understood me.

What I'm trying to get at is somewhat like this YouTube video. I’m the lone wolf dancing; I’m that first guy dancing in the video. That’s the role I play. I encourage people to run and follow and I’m always looking for that first follower. This employee was a first follower and those people are the most important. She understood me and got everyone else to follow. Let people take that idea and make it their own and be proud of it. Never tear down. You have to build, build, build. As a dyslexic, I was torn down a lot so I learned that you never do that. I could tell you ten stories like this, but that one stands out today.

CSC: How have you learned to operate in the business world or what tricks of the trade have you used as a successful entrepreneur with dyslexia?

MW: I’m visual, so to get my ideas across sometimes I say, “Watch this video.” I have a bank of 40-50 videos that I refer to often to help get my ideas across. I was diagnosed with dyslexia in 1964. Temple Grandin had an HBO movie and she was autistic. She’s one of the most amazing people I met. She told me that when you’re diagnosed with something, you just guess at it. She encouraged me to always go back and get re-tested. At age 55, I went back and got myself re-tested and I came up dyslexic but also “twice exceptional.” I wish I had known that earlier. I had a high IQ and my visualizing was off the charts. I took that information and learned from it. I’m very aware of that now and I made our entire factory visual. You can come in there and see how to run a piece of equipment without even having to read a manual. You’d be surprised how many people in the world really can’t read or who will benefit from these visual aids. I was public about struggling with reading and wasn’t afraid of it, but there are a lot of people who are afraid of that. I had reading issues and I never dealt with them. They do the same thing at McDonald’s in their work environment. It’s all done with pictures now and that’s helpful. Also, with new technology such as Audiobooks and iPads, things are changing. If that had been around when I was a child, I would not have had a problem. I feel like I’m ahead of the curve now because of technology. So, did I have a learning disability or was the world just not ready for us? I think the world just wasn’t ready for us yet. ☺

Profile: John Chambers, CEO Cisco

We reached out to John Chambers, CEO of Cisco, and received appreciation for our efforts at camp and a few words about John's success. Read below to hear what his executive assistant shared with us: "John has personally asked me to relay to you his appreciation for extending this invitation to participate in your [blog] project. It certainly is a worthy cause. We would like to extend these notes: John is just one of many individuals who have been able to have a successful career even with a disability such as dyslexia. One attribute which has led to John’s success is his infectious attitude about life. From a young age, John had a very optimistic outlook on everything. He had a wonderful teacher in his early years who recognized his challenges and worked with him to overcome it. His parents, both being doctors, also supported and encouraged him throughout his childhood. John’s attitude and emotional insight has proved to be one of his most powerful tools, coupled with his perseverance, John has not let his learning disability be an excuse. He hopes the campers will find his words and suggestions encouraging."

John Chambers is Chairman and CEO of Cisco. He has helped grow the company from $70 million when he joined Cisco in January 1991, to $1.2 billion when he assumed the role of CEO, to record revenues of $48.6 billion in FY13. In 2006, Chambers was named Chairman of the Board, in addition to his CEO role. Chambers has received numerous awards for his leadership over his past 18 years at the helm of Cisco, including the 2012 Bower Award for Business Leadership from the Franklin Institute, Time Magazine's "100 Most Influential People," one of Barron's' "World's Best CEOs," the "Best Boss in America" by 20/20, one ofBusinessWeek's "Top 25 Executives Worldwide," "CEO of the Year" by Chief Executive Magazine, the Business Council's "Award for Corporate Leadership," and "Best Investor Relations by a CEO" from Investor Relations Magazine three times. Read more.

Interview: Steve Walker (Get Ready for Incredible)

Today's interview is with inspiring individual Steve Walker. We're not even going to introduce you to him. We're just going to let him speak for himself. Read on...you'll see why... Camp Spring Creek: We enjoyed your interview on HBO’s Journey Into Dyslexia. Your story is very moving. For our readers who have not seen the documentary, could you briefly tell us about the positive learning experience you had working in the machine shop in high school?

Steve Walker: It was the only thing as a young adult that I could get a result from that was positive and also created something that had immediate, tangible purpose. I had one teacher, Joe Pasenka, and he saw me checking out from life in general and I think it was a really honorable thing he did by letting me play in that machine shop. The school was shutting the machine shop down, so you weren’t technically supposed to be there. He really let me do my thing which, as it turns out, is the correct way to think. He knew I pushed back against traditional learning, so he didn’t push instructions at me. He let me work until I came across a problem and then I’d ask a question. If you think about it, a person is much more motivated to learn when they have a need to understand.

CSC: That reminds me a little of the Montessori teaching method or some of the research discussed in Flow by Mihaly Csikzentmihalyi. What have you been learning about education methods today?

SW: I went on an educational tour of my own recently, because I wanted to understand education. I was a little horrified by how everything was going. I felt shameful about what had happened to me as a child--being made to feel stupid, being so misunderstood--and I felt despair about how little people know about learning. There are places where great things are happening, of course, but the general system is really antiquated and needs spiffing up. So I went on this tour...I talked to some teachers who were threatened with getting fired if they used the word “dyslexia.” It was quite an eye-opener and frustrating enough that I’ve joined a number of university boards and have met with leaders of schools or superintendents and tried to have exchanges about about how we can make changes in the system.

On my end of things, I hire a lot of engineers and so I've been talking to engineering schools about what they teach. Teachers are teaching math...but you don’t do math in engineering. Computers do the math. It’s creative thinking that needs to be taught and that’s what employers like me look for. I’m trying to tell people that if you back off on the math a little, which is so automated, the engineers don’t need it and they will be fine. I don’t discourage people from learning math, of course. But we need to look at the content that we’re teaching as well as the way we teach it. It's great if you can spell correctly. But some things have pretty limited applications to a job and I’m having conversations with people, especially in engineering schools, about this. These conversations are powerful; sometimes people are blown away by my perspective. After thinking about it, they’re usually quite open. Look at the TED Talk on self-teaching. It’s about a global initiative to examine how we teach and it’s a little extreme, but it’s also very enjoyable and funny. I just like to try and challenge people’s minds a little. I don’t know all the solutions but I do know that a lot of what we’re doing right now doesn’t make sense.

CSC: You built a successful, multi-million dollar business by solving a simple problem: Certain wood stoves being sold in the United States required wood pellets for fuel. At the time, the pellets were only available overseas. From scratch, you built the machines and designed the company—starting in your own basement—that is now New England Wood Pellet, the largest manufacturer and distributor of clean, renewable wood pellet fuel in the Northeastern United States. What is it about the “dyslexic brain,” as they say, that enables you to think outside the box more effectively than others?

SW: I think there are two things. First, if you’ve had to struggle a little or if you’re dealt some challenges or if you’re not “normal," especially when you're younger, then you automatically get a different perspective and I think that perspective is extremely helpful. What seems daunting and impossible as a kid going through school, possibly turns out to be the best lesson you’re going to get.

Second, there's neurology and the physics of the brain. Dyslexics do think differently and in my own experience and research, the dyslexic mind in general is lacking in reading. Not always, but often. Some of society’s most pressing issues have been solved by dyslexic brains. There are some true, honest to goodness, neurological differences that make us better at certain things than the majority of other people. Of course, running or starting a business requires you to be the ultimate multi-tasker and synthesizer. We can do that. We have very cluttered files in our brains, which makes it very difficult to organize, but that can work out okay in the end. Think about solving crimes: It’s all these little things that seem completely irrelevant and we’re used to that. We can work with that. We’re constantly being bombarded by things that seem irrelevant so, eventually, we find things we weren’t even looking for…and solve the crime. The military is especially looking for dyslexics for this exact reason.

I know I’m a little jaded because I had such a profoundly tough time in school, so I understand that. I’m only now linking a lot of challenges in my life back to those challenges in school. Dyslexia was not commonly identified then. It was not a familiar term. Kids today aren’t alone, at least. This is where I see that places like Camp Spring Creek are just great. You can get these kids together and they all feel it, it’s a good thing. Everyone’s got their head around it and they’re working together. What you’re doing at camp is probably an exception to the rule, because so many people still get lost in the system and don’t get help. Let’s keep the pressure on people and say that our work isn’t done yet. We need more of this, we need people who really do get it.

CSC: Can you tell us your personal story of embracing dyslexia?

SW: Four or five years ago, if you had asked me if I was dyslexic I wouldn’t have gone there. It reminded me of school and I was done with that. I wasn’t going down that route and I wasn't talking about it. Later on, what changed is that there was an in-depth study by the Kauffman Foundation done on entrepreneurs. They found there was an earth-shattering number of dyslexics who succeeded as entrepreneurs. Then, they wanted to find more people to study from around the world and all kinds of professions. The Kauffman Foundation called and said, “We heard you’re dyslexic,” and I had to stop. The call had to do with my brother, who has a dyslexic child. The Kauffman Foundation was studying my nephew and they got to talking. I met the profile and they placed the call.

I agreed to the study and I got over the shame because they’d already “found me out” anyway. Besides, it was the Kauffman Foundation, which has an incredible reputation. As it turns out, it was life-altering. It led to the HBO documentary Journey Into Dyslexia and numerous speaking events. You name it. It was all very good...but quite frankly, it’d probably be more fun to hang out with you guys at Camp Spring Creek for a week.

Once I learned how screwed up our education system was, there was a lot of anger that came out of that. Anger is a great motivator, unfortunately, but steered in the right way it can do great things. I came out, I talked about it, I told the world. I realized that it was important for kids and other adults to see that and I got fan letters from both. Appropriately, there’s a huge emphasis on kids, but I also think that our whole society would do well knowing that this is in your DNA. It is what it is. You are who you are. It doesn’t go away for adults and so many of them need to hear that, too. People don’t like talking about it. It’s very, very hard. I’ve had to learn to be gentle when I’m talking to people I don’t know very well because you have to treat these things delicately.

At the end of the day, once we get our education system figured out, I don’t think the word “dyslexia” will even be necessary. It’s about recreating how people learn, but ultimately it’s no different than remembering that we’re all physically different. We’re tall, we’re short, we’re fit, we’re not. Our brains are different from one to the next to the next, too. The beauty of all of this is that there’s just so, so, so much that can be done and that’s inspiring. Places like Camp Spring Creek are what need to happen now, until someday in the future we can just make education work for everybody.

Wrightslaw: An Interview with Peter Wright

Pete Wright is an attorney who represents children with special educational needs. In second grade, Pete was diagnosed with learning disabilities including dyslexia, dysgraphia and ADHD. He was fortunate—his learning problems were identified early. His parents obtained intensive Orton-Gillingham remediation for him by Diana Hanbury King. Pete's determination to help children grew out of his own educational experiences. While attending Randolph Macon College, Pete worked in a Juvenile Training School as a houseparent. After graduation with a degree in Psychology, he worked in another Juvenile Training School and ultimately was honored as Virginia's "Juvenile Probation Officer of the Year." During that time, Pete was also attending evening college in a graduate psychology program at Virginia Commonwealth University. In 1977, Pete graduated from T. C. Williams Law School at the University of Richmond. In 1993, Pete successfully represented Shannon Carter, a child with dyslexia, before the U. S. Supreme Court. (510 U.S. 7) This landmark, 9-0 decision, resulted in the Carters, and many parents since, being able to recover the cost of their child’s private, Orton-Gillingham, special education tuition. We were honored to interview him. Camp Spring Creek: It’s been so moving for us to review and share your story over the past week and half with our readers, so let us begin by saying “thank you” on behalf of all parents, children, and advocates in the learning differences field. We’re thrilled that your grandson will be joining us at camp this summer. We know that dyslexia is genetic and that both you and your grandson have been diagnosed with it. Were you the first to recognize this learning difference in your grandson? What do you hope he will gain from Camp Spring Creek?

Pete Wright: No. Both my son and daughter-in-law recognized these issues early on, in part because of knowing my history and my son’s own personal experience with LD in his early elementary years. My grandson’s biggest issue is more dysgraphia than anything. He is very, very bright and yet, because of the dysgraphia, and being so far behind his peers, he feels very inadequate and it’s having an adverse impact on his self-esteem and perception of self. I’m hoping that, as his written language skills improve and increase, the self-esteem and emotional issues that relate to that will dissipate.

I can tell you from my own personal experience and having worked with so many kids since the ‘60’s, that children with dyslexia, dysgraphia and dyscalculia, often feel stupid because of their inadequate skills and they get depressed. When that happens, many individuals recommend counseling and therapy. I disagree. I have always taken the position with my clients that we have to teach the youngster how to read, write, spell, and do arithmetic and the self-esteem will improve, the depression will go by the wayside, and things will turn around. Almost always, that has been the case.

CSC: You were diagnosed with dyslexia before it even had an official name in the United States. Now, as a result of your work and Wrightslaw, “dyslexia” is much more of a household word and many parents of children with learning differences now understand that their children have a legal right to equal education opportunities. We’ve come a long way. That said, you’re still hard at work. What do you see as some of today’s greatest remaining challenges in the LD advocacy and legal rights world?

PW: I was actually diagnosed with Strephosymbolia, also known at that time, as Word Blindness. (See my YouTube video about Strephosymbolia and Dr. Orton.) Strephosymbolia was the word used by Dr. Samuel T. Orton on July 25, 1925 when he presented the concept to the American Neurological Society. Strephrosymbolia later became known as dyslexia, dysgraphia and dyscalculia.

From a legal perspective the word “dyslexia” has been in the special education statute since 1975 when the Education for All Handicapped Children Act was passed. (It is now known as the Individuals with Disabilities Education Act, i.e., “IDEA 2004.” The last revision was in 2004.) Even though it has been in the law as a part of the definition of a learning disability since 1975, some special educators and school psychologists around the country deny that it exists or assert that it’s a medical issue, not an educational issue, and it’s not covered by the federal special education law. This tells you that they have not looked at either the law or the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) which identifies it under “Specific Learning Disorder” subtype, “Impairment in Reading.”

Because of resistance in some school districts, parents have formed Decoding Dyslexia groups nationwide and approached their state legislatures to put the word in the state statute, define it, and also define the nature of services that children with dyslexia are supposed to receive. As a result, a number of states have since passed statutes that define dyslexia and spell out what needs to be done. The definition used by most of these states, word for word, tracks the definition used by the International Dyslexia Association (IDA).

The big challenge will be to change the outdated beliefs of many special education administrators and school psychologists in the bureaucratic sector and also those in the trenches working with the kids—getting them to accept that they do have to teach children with dyslexia the proper way so that the children will learn how to read, write, spell, and do arithmetic. Using talking books, having others read textbooks aloud to the child or having others write for the child,  becomes the focus, that is to provide modifications and accommodations, rather than teaching the critical reading, writing, arithmetic and spelling skills. Sadly, it is often rooted in the belief that, because the child has dyslexia, the child cannot learn how to read or write, spell or do arithmetic. The heavy reliance on modifications and accommodations does not help the child in later years, once they’re out of school and employed.

CSC: Many famous dyslexics have been interviewed about their struggles with early education and have moving stories to share about how they finally moved past their learning differences and were able to see them as learning advantages. Did you experience a similar pivotal turning point in your own education? If so, please tell us about that moment or realization:

PW: In 1952, at the beginning of my second grade year, I was totally illiterate. I could not read, write, spell, or do arithmetic. My parents were told that I was uneducable and that nothing could be done. They were also told that I was mentally retarded and emotionally disturbed. Fortunately a private evaluation identified me as having “Strephosymbolia" and my parents were told to find someone skilled in teaching children using the approach created by Dr. Orton and Anna Gillingham. They found Diana Hanbury King who tutored me, every day, one-on-one, after school, using the Orton-Gillingham approach, for two years. Her goal was to get me two years above my age and grade level. Several years later, when I was in the sixth grade, I was tested and my scores were at the eighth grade level.

The changes in me were slow, over two years, during almost all of the second and third grades. Thus there was not a pivotal turning point, or “eureka” moment or realization. I simply learned how to read, write, spell and do arithmetic, at a level surpassing that of my peers.

Diana Hanbury King is now considered to be one of the top experts in the world. Years after working with me, she founded The Kildonan School in Amenia, NY. Last year my grandson spent several days with her as she worked with him and my daughter-in-law. Since then, every day, he works on the exercises Diana created for him and we have seen great progress. It is hard work for him. I remember my own experiences with her and how hard the work was. She is a task-master and has very high expectations. My grandson has become quite aware that putting in the time and working hard is generating great benefits. As expected, at first he complained, but as he saw his own changes in legibility of the written letters, numbers and words, and increased typing speeds, he has become self-motivated.

On another note, there’s a lot of talk about the gift of dyslexia and that dyslexics think outside the box and I agree. But Diana Hanbury King has a different stint on that and she has absolutely nailed it! In December 2012, she spent several days with me and my wife Pam at our home in Deltaville, VA and I did a YouTube interview of her  in which she discusses her theory. All parents of children with dyslexia need to see it. It will surprise you and you, too, will agree. I won’t give away her theory here. Seeing it is believing.

CSC: There are so many resources online that are helpful, but the Internet can also be a dizzying place for a parent looking into his or her LD child’s educational rights. For a parent just starting out, what top three links can you share to help them understand their rights and options?

PW: In all honesty, there is nothing that is comparable to our website. We have more traffic than the US Department of Education. We have almost 100,000 subscribers to our online newsletter. If you research something related to special education law, so often Google will take you back to our wrightslaw.com website. Between our Wrightslaw: Special Education Law book, our Wrightslaw: From Emotions to Advocacy book, and our Wrightslaw: All About IEPs book, we have sold almost a half million copies. In my Wrightslaw training programs, (about 25 per year), I tell parents that they have to read our From Emotions to Advocacy book three times. The first read is an emotional roller coaster for the parents. The second read they can digest it and highlight and take notes. The third read is the synthesis of the second read and putting it all together.

Interview: Sara Hines

We are delighted to announce that today’s inspiring individual interview features educator and advocate Sara Hines. Sara grew up in Washington DC and earned a PhD in Special Education from the University of Maryland. She has taught at public and private schools in the DC area, was a professor at Hunter College in Manhattan, and currently serves as the Lower School Head at the McLean School of Maryland. Many students at McLean have learning differences, ADHD, or had school anxiety when they entered. Read more: Camp Spring Creek: As Head of Lower School at McLean School, we’ve read that your personal motto is “Children first!” You’ve been described as “vibrant” and “driven.” What is it about your work on behalf of children with learning differences that fills you up with such inspiration?

Sara Hines: I find students with learning differences incredibly interesting and filled with potential. I think that allowing any student to reach their full potential is a very rewarding and important aspiration. Each child, in my opinion, is unique, and educators are responsible for investigating those unique gifts and qualities to design accessible instruction. Teachers must be creative and flexible in designing instruction.

CSC: Tell us more about the importance of early intervention for children with learning differences. For instance, for the parent who is reticent to have his/her child “singled out,” what advice might be good to keep in mind?

SH: The older the child, the harder it is to remediate in academic as well as social areas. A child with LD in a regular classroom often develops self-esteem issues that are hard to reverse. Also, to compensate for, or pretend that they do not have academic issues, children develop maladaptive approaches that are hard to unlearn. At our school, parents usually tell us that their child “is a different person” after entering McLean.

CSC: What were your own classroom experiences like as a child? Did you struggle in a traditional setting, were you nurtured above and beyond by a particularly gifted teacher, did you cruise right on through, or struggle daily? We’re curious how whatever you experienced as a youth informs the work you do today.

SH: I was a strong student but I usually earned “fair” in effort. I day-dreamed all day and only paid attention when I needed to respond. I never was engaged or motivated in school until I earned my PhD. I believe that I had several learning differences that were undiagnosed because I was able to do well enough in a very traditional, language driven curricula. There were 36 students in my class in Elementary School, so I was able to stay under the radar. It is only through my studies in LD that I realized my very uneven learning profile.

Interview: Van Westervelt

Camp Spring Creek: Please tell us briefly how you become involved with the Learning Assistance Center at Wake Forest University and what your role is there:

Van Westervelt: Sure. I’m in my 16^th year as the Director of the LAC and Disability Services. It has been a great experience here and I am highly engaged in providing academic support services for the undergraduate, graduate and professional school student body as well as disability services for any students who disclose a disability. We serve only Wake Forest students. To understand what we do, our mission statement best represents that. Here’s an excerpt: “…Our purpose is to strike a balance between providing direct assistance for skill building, while facilitating each student’s own discovery process for their individual learning and achievement style in and beyond the classroom…We strive to assist students in receiving accommodations that improve their ability to learn while assisting them to better understand their disability and realize that disability can co-exist with outstanding talents and outcomes.”

CSC: What fueled your interest in psychology and specifically in learning disabilities and dyslexia?

VW: My grandmother, Helene Durbrow, in the mid 1930’s had one son who in the 4^th grade was struggling significantly with reading and getting very frustrated despite being quite bright in other areas.  From her educational connections as a kindergarten teacher, she was referred to Samuel Orton MD, a neurologist at Columbia in NYC, who was working on intervention approaches for children with dyslexia, so she took her son to him for a consultation.  Dr. Orton instructed her in a remediation plan for her son that was based on what is now known as the Orton-Gillingham Multisensory approach.  He responded well and she was so good at applying this methodology that Dr. Orton began referring other students to her and that became her educational specialty.  She received extensive training from Anna Gillingham, Mrs. Orton and Bessie Stillman as she started remedial programs at several private schools including  Sidwell Friends in DC and Phillips Academy in Andover, MA.

Spurred on by encouragement from Dr. Orton and Anna, in 1946 she started a camp in Vermont at the foot of Mt. Mansfield and called it Camp Mansfield.  Dr. Orton and his team realized that his students often lost significant ground over the summer and also the summer could provide an opportunity to focus on specific skills in need of remediation.  Along with the educational focus at times in the day for peak attention, the camp had an array of recreation and outdoor challenge activities.  My mother happened to be the Camp nurse, so from infancy my two brothers and I were able to escape the humidity of Baltimore city each summer and be fully involved in the nature and outdoor activities that Vermont had to offer. Helene took a position at Children’s Hospital in Boston training teachers there and continued to run the camp for 16 years.  I remember the large wooden plaque that had the camp motto carved in it “A Strong Mind in a Strong Body.”  I think that life style and philosophy must have really imprinted on me because first I became a physical therapist and then a child-adolescent psychologist!

Helene recruited a faculty of teachers who would reside at camp or commute from local towns for the whole 8-week session.  One British teacher from the DC area, Diana King, was so impressed with the remedial approach that she learned from my grandmother that she would go on to establish her own school, Kildonan, and summer camp, Dunnabeck, both originally in PA, geared for bright students with dyslexia. My brother, Mark, would also go on to establish camp programs in the Baltimore area and become the Assistant Head of the Jemicy School for dyslexic students in Baltimore.

CSC: Your area of expertise is assessment and intervention. What would you say to a parent who does not have extra time, energy, finances, or community resources…but has a hunch that “something’s up” with their child’s learning style? How can this parent get his or her child what is needed within the family’s means?

VW: I think the first step would be to consult with the child’s teacher and see what his/her current school has to offer as far as assessment and intervention.  A next option, if there is not insurance or funding for a private evaluation, would be to see if a local university has an evaluation clinic for learning difficulties.  For example in our area, UNCG has two clinics, one for LD and the other for ADHD (336-334-5662), that offer evaluations on a sliding scale basis as far as costs.  The testing is carried out by a doctoral student under the supervision of a faculty member.  The assessments are quite thorough and the students from Wake Forest who I have referred there have found the results to be very helpful.

CSC: If you could help dispel one myth or stereotype about children with dyslexia, what would it be and how would you address it?

VW: Some of the early descriptions of difficulties experienced by children with dyslexia focused mainly on letter reversals and writing backwards.  Through multiple research studies we now know the primary core deficit is in “phonemic awareness,” which for children without dyslexia is the rather automatic process involved in learning that words are comprised of particular component sounds that can be related to letters.  Visual process difficulties that may show up as letter reversals can be associated with dyslexia but that is not the primary problem to focus on in remedial efforts.

Parents are sometimes told by well-meaning physicians or teachers  “Oh he’ll grow out of it” but, as my grandmother used to advise, “You will either pay now or pay later!” This I took to mean that it was important to rally your resources early on to address the problem because addressing it later in a student’s life can be more complicated and require greater resources.

Interview: Henri Brown

This week, we're very excited to feature Henri Brown in our Inspiring People interview series. Henri Brown is the Director of the Augustine Literary Project/WS, a literacy project that trains and pairs volunteer tutors with low-income children and teens who struggle with literacy skills. She graduated from UVA undergrad and got her Master's from WFU. She lives in Winston-Salem with her husband, Royall Brown, and has two children. Read more about why she thinks "dyslexia" isn't the best word-label for our children, who she views more as "da Vinci Kids."

Camp Spring Creek: Please tell us briefly how you become involved with Augustine Project and what your role is there.

Henri Brown: Like many folks who get interested in Orton education, I had a child who had reading issues. As a family, we were fortunate to be able to  afford a private tutor. As we gratefully paid our tutor, week after week, I kept thinking about those moms who loved their children as much as I did, but who could not afford a tutor. About that time, the Augustine Project in Winston-Salem held their first training. I signed on for their second training in 2002, and I've been here ever since. I started as a volunteer and founding Board member, served as Board Chair in 2006, and became Director of the Winston-Salem project in 2008.

CSC: Currently, Austine Project is serving 124 schools or after school programs. This must work out to be thousands of children! In what ways does Augustine Project serve those children: Through individual tutoring? In-class assistance? Group lessons? Help us "see" things in action from afar:

HB: In Winston-Salem, we serve over 100 children in over thirty schools and after school locations. Our tutors work one-to-one, and each tutor agrees to tutor twice weekly for approximately 45 minutes to an hour. As our tutors are volunteers, most take just one student, although several of our over 100 tutors have  2 or more students. Usually, our tutors go to school, remove the child from class, tutor, and then return the student to class. The schools have great confidence in our tutors. This is why the schools are willing to let us remove a child from class for tutoring twice weekly.

We are also seeding tutors in some after school locations. These are usually homework or feeding ministries. It is extremely valuable to have trained volunteers in these locations.When they encounter a child with a reading problem in one of their programs, hopefully someone there will know how to help.

CSC: If you could help dispel one myth or stereotype about children with dyslexia, what would it be and how would you address it?

HB: First, I'd change the word dyslexia. We've got to get rid of the 'dys' label for children with reading and/or language problems. Take any meaning of 'dys' you like--ill, bad, abnormal, diseased, faulty-- these children don't qualify. Personally, I'd rather call them "da Vinci Kids." This reflects much more of who they really are.

CSC: Please share an "ah-hah" moment that you have experienced as an educator or advocate in your years working with children with learning differences. HB: In the Augustine Project, we get lots and lots of "ah-ha" moments. As a tutor, I loved the recent moment when my teenage student wrote a list and then turned it into a good, solid paragraph--and she knew it. As Director, I love knowing the profound difference that our tutors make in the lives of the children they serve. Recently, our tutor Deb went to meet with the principal at the new school that her student was attending. Out of the school bus window she heard, "Ms. Deb, Ms. Deb, You found me! You found me!" Another student--one who used to say reading was his enemy--is now reading poetry and learning about birds. Another tutor is moving to his 3rd school this year, as he follows his student with unstable housing. I could go on and on.

CSC: What is one thing that you often hear parents say they "wish they had known" as they discover their child has dyslexia or a learning difference? How can other parents be more aware of this in their own children?

HB: I think most parents who discover they have a 'DaVinci Child'--and I was one of them--wish they had figured it out earlier. I knew my child was extraordinarily frustrated in school. I just didn't know why. To that end, the WS Augustine Project has just published a piece on early warning signs for reading difficulties in both English and Spanish. This piece, supported by the Women's Fund of Winston-Salem, focuses on early identification of reading problems in girls.

A Message from Vice President Nelson A. Rockefeller

I was one of the “puzzle children”—dyslexic, or “reverse reader”—and I still have a hard time reading today. But after coping with this problem for more than 60 years, I have a message of encouragement for children with learning disabilities-and their parents. Based on my own experience, my message to dyslexic children is this: Don’t accept anyone’s verdict that you are lazy, stupid or retarded. You may very well be smarter than most other children your age.

Just remember that Woodrow Wilson, Albert Einstein and Leonardo da Vinci also had tough problems with their reading.

You can learn to cope with your problem and turn our so-called disability into a positive advantage.

Dyslexia forced me to develop powers of concentration that have been invaluable throughout my career in business, philanthropy and public life. And I’ve done an enormous amount of reading and public speaking, especially in political campaigns for Governor of New York and President of the United States.

No one had ever heard of dyslexia when I discovered as a boy, along about the third grade, that reading was such a difficult chore that I was in the bottom one-third of my class. None of the educational, medical, and psychological help available today for dyslexics was available in those days. We had no special teachers or tutors, no special classes or courses, no special method of teaching—because nobody understood our problem. Along with an estimated three million other children, I just struggled to understand words that seemed to garble before my eyes, numbers that came out backwards, sentences that were hard to grasp. And so I accepted the verdict of the IQ tests that I wasn’t as bright as most of the rest of my class at the Lincoln School in New York City.

Fortunately for me, the school (though it never taught me to spell) was an experimental, progressive institution with the flexibility to let you develop your own interests and follow them. More to the point, I had a wise and understanding counselor in Dr. Otis W. Caldwell, the headmaster. “Don’t worry,” he said “just because you’re e in the lower third of the class. You’ve got the intelligence. If you work harder and concentrate more, you can make it.”

So I learned, through self-discipline…which is essential for a dyslexic. While I could speak better French than the teacher, because I had learned it as a child, I couldn’t conjugate the verbs; I did flunk Spanish- but now can speak it fluently because I learned it by ear, later, at the Berlitz School. My best subject was mathematics; I understood concepts well beyond my grade level. But it took only one reversed number in a column of figures to cause havoc. When I came close to flunking out in the ninth grade—because I didn’t work very hard that year—I decided that I had better follow Dr. Caldwell’s advice if I wanted to go to college. I even told my high school girlfriend that we would have to stop dating so I could spend the time studying in order to get into Dartmouth.

And I made it by the skin of my teeth.

I made it simply by working harder and longer than the rest—eventually learning to concentrate sufficiently to compensate for my dyslexia in reading. I adopted a regimen of getting up at 5am to study and studying without fail. And thanks to my concentration and the very competitive nature I was born with, I found my academic performance gradually improving. In my freshman year at Dartmouth, I was even admitted to a third-year physics course, and in the middle of my sophomore year, I received two A’s and three B’s for the first semester. My father’s letters were filled with joy and astonishment. I owe a great debt to my professors and to the President Ernest M. Hopkins. I had met Dr. Hopkins earlier and was so impressed that I made Dartmouth my goal. Most of all however, I think I owe my academic improvement to my roommate Johnny French.

Johnny and I were exact opposites. He was reticent, and had the highest IQ in the class. To me, he was that maddening type who got straight A’s with only occasional reference to books or classes. He was absolutely disgusted by my study habits- anybody who got up at 5 in the morning to hit the books was, well, peculiar. Inevitably, Johnny made Phi Beta Kappa in our junior year, but my competitive instincts kept me going. We were both elected to senior fellowships and I made Phi Beta Kappa in my senior year. Johnny, of course had the last word. He announced that he would never wear his PBK key again—that it had lost all meaning.

Looking back over the years, I remember vividly the pain and mortification I felt as a boy of 8, when I was assigned to read a short passage of Scripture at a community vesper service during summer vacation in Maine—and did a thoroughly miserable job of it. I know what a dyslexic child goes through—the frustration of not being able to do what other children do easily, the humiliation of being thought not too bright when such is not the case at all.

My personal discoveries as to what is required to cope with dyslexia could be summarized in these admonitions to the individual dyslexic:

Accept the fact that you have a problem—don’t just try to hide it.

Refuse to feel sorry for yourself.

Realize that you do not have an excuse—you have a challenge.

Work harder and learn mental discipline—the capacity for total concentration

and

Never Quit!

If it helps a dyslexic child to know I went through the same thing…

But can conduct a press conference today in three languages and can read a speech on television though I may have to rehearse it six times

with my sentences broken into segments like these and long words broken into syllables

And learned to read and communicate well enough to be elected Governor of New York four times

And to win congressional confirmation as Vice President of the United States

Then I hope that telling my story as a dyslexic could be an inspiration to the “puzzle children”—for that’s what I really care about.

Interview: Nicole Baker

This week we interviewed inspiring individual Nicole Baker. Nicole has a Master of Arts in Psychology and is also a Specialist in Education with a concentration in Special Education. She’s also a Licensed Psychological Associate. Nicole founded and runs the Academic Assessment Center in Asheville, NC where we frequently refer families. Enjoy her thoughts on educational environments, parent advocacy, and more--including her own experiences being diagnosed with dyslexia. Camp Spring Creek: What is your area of specialty?

Nicole Baker: My specialty is children, reading, education, and implementing interventions within school systems. I assess children with standardized tests, but at the same time I look at their behaviors when performing academic tasks. We talk about school (what is fun, what is hard, what is easy, etc.) and I compile a report with my findings and suggestions for curriculum planning and accommodations. I also consider modifications that I think will be most helpful for the student. When doing this, I like to reference current literature and research and draw upon my individual experience as a learner with dyslexia. I use a multifaceted approach that is individualized to each student and takes into account their needs and applies best practices. In the end, my job is to identify a child’s needs and create a plan for them to succeed academically.

CSC: What are the most common psychological difficulties that children with dyslexia face and why do you suppose that is the case?

NB: I believe that ALL preschool and kindergarten education programs should be multisensory and developed around the Montessori/multisensory methodology of education. It is my belief that this type of education will do two things. First, it will help with early identification of students with learning differences. Second, it will help kids that may not be 100% LD make the early gains necessary to not go down the LD path. Strong, early multisensory education that is peace-centered and based in imaginary/play while also fostering independent learning ultimately builds the strong, early skills needed to form an exceptional backbone for future learning.  Quality early childhood education is ESSENTIAL.

I also find that, in most cases, learning differences are being identified too late. I often get students in my office at the 3^rd and 4^th grade levels that are just being flagged as struggling in the classroom. Parents will often say that they asked teachers early at the kindergarten or 1^st grade level, and they were told “it is too early to tell; you need to wait.” This is incorrect!

CSC: Recognizing that you respect the confidentiality of your clients, is it possible for you to tell us in general/anonymous terms about a particular moment of "ah-hah" or realization that you had with a child in your practice? What did you learn in that moment and what corner do you think the child turned?

NB: I work with a lot of high school and college age kids who are frustrated that their LD (dyslexia, ADHD, Executive Dysfunction, etc.) makes learning “hard.” I tell kids all the time: “Life is hard, but worth the work.” I think we are setting kids up for failure by letting them believe life is going to be easy or by protecting them from failure. I tell clients that my failures and struggles as an undiagnosed dyslexic have made me a tough, hard, worker who will almost never give up. If you want something bad enough, then it is worth working for. Beat the challenge and see how good it feels. I know better than anyone how hard your struggle feels, but if you find the one thing that you are passionate about (in my case psychology, reading, children) I call it a “hook,” then you can read higher than your reading level, comprehend better than any of these tests say, and “beat the odds” because that’s what LD kids do. We/dyslexic kids are great at thinking outside of the box and making things happen. Find your “hook” and make it happen!

CSC: If you could give one message to parents and educators of children with dyslexia, what would that message be?

NB: I would say to surround your children with books, music, art, and love. Turn off the darn TV and put down the cell phone (advice I should follow myself). All of these things will make he/she well-rounded, develop their vocabulary and experiential knowledge, and give them a sense of peace and well-being. Reading to your children and exposing them to books and print increases print awareness, love of reading, and general reading skills. Homes and schools filled with books, poetry, music, and art are fun, peaceful places where children can learn and grow happily.

Also, follow your parental intuition. If you feel early on in your child’s development that there is an issue or a need that your child has, listen to your gut and pursue answers. Further, pursue multiple opinions and work with people you are comfortable with and that you trust. If an answer, report, or finding from an expert feels wrong or off and doesn’t reflect what you honestly see in your child on a day-to-day basis, then dig deeper. Always be your child’s biggest advocate!

Interview: Nancy Burleson

Camp Spring Creek is delighted to welcome Nancy Burleson to our Board. Nancy brings decades of educational and literacy experience to the Board, not to mention an affinity for Western North Carolina. Camp Spring Creek: Please tell us a little bit about yourself.

Nancy Burleson: I grew up in Spruce Pine, NC and have lived here all my life, with the exception of the four years I spent in college at UNC-Greenboro. I am a retired teacher with thirty years of experience in the Mitchell County School System. During that time, I spent most of my career in the fourth and fifth grades. For the last six years, I served as the Reading Coordinator for the county and worked in all of the schools. I have enjoyed being a part of the community and currently serve on the boards of the Spruce Pine Public Library, Spruce Pine Montessori School, and the Foundation Board of Blue Ridge Regional Hospital, in addition to that of Camp Spring Creek.

CSC: Can you share an early education memory of your own with our readers?

NB: I was fortunate to grow up in a home where education, and reading in particular, were valued and encouraged by my parents. I had a great uncle who lived with us when I was a child who read to me constantly. My mother told me that he enjoyed the experience so much himself that he would often read to me until he had no voice left. My parents were also avid readers, and I am sure their example had an early impact on my love for books.

CSC: What inspired you to volunteer for the Camp Spring Creek board?

NB: I am very interested in the mission and the entire experience of Camp Spring Creek. I have always had a passion for the importance of reading, especially in the early years, and feel that success in reading is necessary for success in school and in life. By meeting the needs of struggling readers, Camp Spring Creek is preparing children for success in both.

CSC: What part of the Camp Spring Creek mission or experience do you find most inspiring or important?

NB: I believe that the most inspiring and most important part of Camp Spring Creek is their genuine concern for education of the whole child in a rewarding and fun-filled experience. The desire of the directors to connect with the public schools is also commendable. Their commitment to the constant improvement of every area of their camp is truly inspirational.

Interview: Ben Foss

In our next installment of interviews with Inspiring People, Ben Foss talks to us about shame, empowerment, and some of the tools and organizations that are most successful in their help for children with dyslexia today.

Ben Foss is a prominent entrepreneur and activist and the founder of Headstrong Nation, a not-for-profit organization serving the dyslexic community. Foss graduated from Wesleyan University and earned a JD/MBA from Stanford Law and Business Schools. He invented the Intel Reader, a mobile device that takes photos of text and recites it aloud on the spot. Ben is a co-founder of Integration Ventures, a venture capital firm that is looking to invest in dyslexic entrepreneurs. He has been featured in The New York Times, The Wall Street Journal, Fox Business News, ABC, CNN, HBO, and the BBC. Represented by the Random House Speakers Bureau, he regularly speaks to Fortune 500 companies, public policy organizations, and colleges and universities across the country.

Camp Spring Creek: We're a fan of your work because of your book, The Dyslexia Empowerment Plan, but the truth is that you've also completed many other successful projects in various fields. Can you briefly tell our audience about the Intel Reader you invented?

Ben Foss: I invented the Intel Reader in 2006. Eventually, I received five U.S. Patents for my initial idea of a device that would take a photograph of any printed material and read aloud on the spot. The device began shipping in 2009 and was the first consumer product in 7 years from Intel. It is still in the marketplace today. It is currently sold by Care Innovations, an Intel and GE focused healthcare company.

CSC: As founder of the Headstrong Nation, which believes that "dyslexia is not a disease, it is a community," what do you see as the single-most significant struggle facing children with dyslexia today? By contrast, what is a struggle that, because of organizations like Camp Spring Creek and Headstrong Nation, many children with dyslexia don't have to face anymore?

BF: The central issue for all dyslexics is shame. Kids are told they are unworthy in the first, second, and third grade if they cannot read or spell with ease. There are three types of reading: eye reading, ear reading, and finger reading. Mainstream people read with their eyes, blind people read with their fingers, and dyslexics read with their ears, listening to text very fast. There are really telling videos of that experience right here.

Shame makes you feel as though you are a bad person just for being who you are, not what you did. To get rid of shame, someone needs to understand that they are not broken and that they have strengths and weaknesses. A truly successful and resilient person learns how to play to their strengths and compensate for weaknesses.

The big change in dyslexia is that there are now public role models that people can look up to. These role models come from organizations teaching that dyslexia is not a disease and, in fact, is your ticket to enter a fabulous community. Camp Spring Creek does this in spades.

CSC: Please describe a turning point or moving experience you've had in your life as an adult advocate for people with dyslexia. Perhaps you remember the first time you saw a child with dyslexia using the Intel Reader. Maybe an audience member approached you at a book-signing event and shared a moving, personal story with you. Whatever the case, when did you most recently find yourself moved beyond words, feeling satisfied that true change and positive advocacy for dyslexics had been accomplished?

BF: One of my favorite stories about the Intel Reader involves a young man of nine years old who came to me and told me that he used the Intel Reader on the instructions for the board game Risk. After hearing the instructions out loud, he figured out that his friends had been cheating! That is what advocacy and independence look like. Having access to learning on your own terms and using it to something that you do enjoy.

CSC: Is there a book, organization, leader, or artist in the field of education advocacy or dyslexia studies, etc. that you wish more people knew about? If so, please share your recommendation with us!

BF: Eye to Eye is a  great organization. It is wonderful because it is led by people who are dyslexic and offers mentoring between college kids who are dyslexic and elementary school kids with dyslexia. When I see “dyslexia,” I mean dyscalculia, dysgraphia, dyspraxia, and ADHD. Everybody is in the club!

In His Own Words: Samuel Torrey Orton

From Reading, Writing, and Speech Problems in Children by Samuel Torrey Orton, co-founder of the Orton-Gillingham approach. Originally published in 1937: “They are usually interested in the story of how one side of the brain works in the language function and intrigued with the idea that the two halves of their brain may be ‘squabbling over which is to be the boss’ and pleased when it is possible to tell them it frequently is on the basis of intelligence tests, that their brains are better than average but just not working right for the particular subject in which they have met trouble. This sort of understanding of how his difficulty may have arisen will often go a long way toward preventing the child from falling back on explanations based on emotional instability, ‘nervousness,’ undue fears, or lack of self-confidence which in themselves are not entirely emotionally acceptable and which often seem to operate as a vicious circle. An even more complete explanation to the parents and to the teachers of the specific nature of all of these difficulties is of prime importance in treatment of the child since the school failures have all too often been interpreted as due to some degree of mental defect or to defective attention or to laziness or to poor training and frequently with an implication of blame which may very easily foster an unwarranted feeling of doubt in the child or the parent or both.”

Interview: Janet George

Janet George, M.S., M.ED., Fellow/AOGPE, is the Founder and Head of The Fortune Academy and the subject of today's interview in our "inspiring people" series. According to the school's website, “The school is designed to provide an environment that nurtures each child's development, builds upon his/her individual strengths, and offers remediation in areas of weakness…Fortune Academy is 1 of only 11 schools in the United States to have its Orton-Gillingham instruction program accredited by the Academy of Orton-Gillingham Practitioners and Educators.” The Fortune Academy opened its doors in 2002. Camp Spring Creek: If you could offer one message to parents, potential employers, or members of society in general about life with a learning difference, what would that message be? What kind of shift in our thinking would be most helpful in bridging the gap or tearing down stereotypes?

Janet George: My message would be that having a learning difference is a life-long journey that  doesn't necessarily get easier, it just gets "different." Learning about your strengths helps you manage and work around those areas that can challenge you. All individuals, whether LD or not, gravitate to what they are interested in. Those with learning differences have incredible gifts that can elevate a business to a new level, can invent new devices to support the medical field, and can design and build beautiful structures for communities.

CSC: Can you tell us about a particularly inspiring or moving moment you witnessed with a child, teacher, or parent in the LD community?

JG: My "moments" happen daily when I have the opportunity to sit with a child one-on-one and have them read to me. Their sense of pride and wanting to show me how much they are improving, well...their smiles and hugs just warm my heart and feed my soul!

CSC: Each Head of School brings his/her own personal skill set and passions to a job. What would you say you bring above and beyond the mission of The Fortune Academy?

JG: My passion is to make all of our students feel special, safe, empowered, and instill in them the confidence that they CAN learn. Additionally and as importantly, helping children find their strengths--what they are good at and are interested in--and then nurturing those strengths; that is incredibly important. Greeting them every single morning as they exit their cars, welcoming them with a smile (and sometimes a hug) and letting them know how great it is that THEY are at school--all of those things are important.

CSC: The Fortune Academy offers a dynamic education for grades 1-12, but also gets involved with community outreach, trainings, and maintains a resource center. Can you tell us more about this?

JG: We have a partnership with a local college, located less than 1 mile from our campus, that our 11th and 12th graders can attend courses for duel credit. This allows them to take classes if they are interested in a vocational trade OR if they are working towards an honors diplomas. All teacher trainings happen every Friday, 1:30-2:30. All faculty members are required to participate. Our trainings include research, language instruction, assessments (lead by our school psych, who is also a Fellow and PhD), legal implications (provided by our Board Member who is a Sp.Ed. Attorney)., etc. Our community resource center provides lending materials and offers guidance for parents needing assistance. We also provide free outreach programs.